My dh has an appointment with the new lung specialist around the middle of September. I will give ya'll an update then but I really think this is going to work so much better. He's willing to see Ken once a year with a phone consult & local testing done at the 6 month point. We're very excited! Finally, someone who really understands. More on that in September after the appointment.
BTW, my dh is doing well - this time of year is hard for him as he's allergic to grasses, hay, and hay dust (we live in the country with hay fields all around us). He's had a little congestion but it only lasts for a few hours and then he's fine. I really think the augmentation treatments are doing him a lot of good. AND we both donated blood for the DNA Bank (Dr. Brantley, UF) - got our "results" back last week. Obviously, my dh is ZZ (confirmed) - but his levels of antitrypsin are one range higher than the ZZ (full-blown Alpha-1 for those who don't know) usually indicates. That and his continued good health is all the proof I need!! I had my blood tested too - just to make sure - and I am an MM (normal, as far as antitrypsin levels anyway). But my blood can still be helpful in their research - I really hope it makes a difference. I'll add that link in future posts - if I can remember. Until next time.....
My wonderful husband of 15 years was diagnosed with Alpha-1 Antitrypsin Deficiency in 2006. The news was devastating but some how we managed to get beyond the initial shock! We hope this blog will be useful and informative for others who may not know they have Alpha-1 or have been recently diagnosed. While also showing that life can go on in a relatively normal fashion. Research is making progress and there is hope. We are truly blessed with 5 children, 18 grandchildren, and one loving family.
Showing posts with label Brantley. Show all posts
Showing posts with label Brantley. Show all posts
Monday, August 6, 2007
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